As most of you know, Mr. Williams passed away recently. Social Media exploded with the news and outpouring of sympathy, shock and even negative comments. There were a lot of posts of quotes by Mr. Williams and one in particular struck me.
This struck me because this is a major feeling held by a lot of people with disabilities. Particularly among the Deaf and Deafblind. Nine out of ten children born with a hearing loss have parents that are hearing, 3/4th of these parents do not learn Sign Language.
So picture this, a family sitting around a dinner table chatting, but the Deaf child is not able to follow along the conversation until someone stops to haltingly explain what's being said. What about the moment something funny is said and everyone's laughing, except the Deaf child. The most common and most irritating comment we are told is "I'll tell you later", "It wasn't important", "you won't understand".
How about those with Usher's Syndrome, or Deafblind, once part of a vibrant Deaf culture and enjoyed participating in Deaf events, are soon left out as they try to struggle to keep up with flurrying hands. It's still the same situation, other Deaf unwilling to stop watching the conversation to tactile communicate with them, finding less and less accommodating events and less and less invitations to such events.
So even though you're surrounded by family members, and friends, who love you, you're utterly and desperately alone. The unwillingness of others to include you, the helplessness of losing independence, loneliness, isolation & feelings of unworthiness arethe worse feelings in the world.
"One finds limits by pushing them" ~ Herbert Simon
Under My Fingertips
I have been Deaf & legally Blind since birth. I've been married to my hearing Husband for 15 years and we have 2 hearing children, a boy 14, and a girl 12.